{"id":7573,"date":"2014-09-15T11:31:06","date_gmt":"2014-09-15T10:31:06","guid":{"rendered":"http:\/\/i3.cnrs.fr\/en\/evenement\/un-numero-special-de-biosocieties-sur-l-evidence-based-activism\/"},"modified":"2018-05-28T15:19:58","modified_gmt":"2018-05-28T14:19:58","slug":"un-numero-special-de-biosocieties-sur-l-evidence-based-activism","status":"publish","type":"actualite","link":"https:\/\/i3-cnrs.fr\/en\/actualite\/un-numero-special-de-biosocieties-sur-l-evidence-based-activism\/","title":{"rendered":"A special issue of Biosocieties on "Evidence-Based Activism""},"content":{"rendered":"

Coordinated by Vololona Rabeharisoa (CSI), Madeleine Akrich (CSI), and Tiago Moreira (Durham University), this special issue provides empirical data and analysis on what the authors call “evidence-based activism”. This notion has been proposed to capture patients\u2019 and health activists\u2019 groups\u2019 focus on knowledge production and knowledge mobilisation in the governance of health issues. The groups engaged in evidence-based activism articulate a variety of credentialed knowledge and \u2018experiential knowledge\u2019 with a view to explore concerned people\u2019s situations, to make themselves part and parcel of the networks of expertise on their conditions in their national contexts, and to elaborate evidence on the issues they deem important to address both at an individual and at a collective level. In contrast to health movements which contest institutions from the outside, they work \u2018from within\u2019 to imagine new epistemic and political appraisal of their causes and conditions. \u2018Evidence-based activism\u2019 entails a collective inquiry associating patients\/activists and specialists\/professionals in the conjoint fabrics of scientific statements and political claims. From a conceptual standpoint, \u2018evidence-based activism\u2019 sheds light on the ongoing co-production of matters of fact and matters of concern in contemporary technological democracies.<\/p>\n

It includes the following papers:<\/p>\n

Evidence-based activism: Patients\u2019, users\u2019 and activists\u2019 groups in knowledge society<\/strong><\/p>\n

Vololona\u00a0Rabeharisoa, Tiago\u00a0Moreira and Madeleine\u00a0Akrich<\/p>\n

Practising childbirth activism: A politics of evidence<\/strong><\/p>\n

Madeleine\u00a0Akrich, M\u00e1ire\u00a0Leane, Celia\u00a0Roberts and Jo\u00e3o\u00a0Arriscado Nunes<\/p>\n

Attention deficit hyperactivity disorder in France and Ireland: Parents\u2019 groups\u2019 scientific and political framing of an unsettled condition<\/strong><\/p>\n

Claire\u00a0Edwards, Etaoine\u00a0Howlett, Madeleine\u00a0Akrich and Vololona\u00a0Rabeharisoa<\/p>\n

Assembling dementia care: Patient organisations and social research<\/strong><\/p>\n

Tiago\u00a0Moreira, Orla\u00a0O’Donovan and Etaoine\u00a0Howlett<\/p>\n

From \u2018politics of numbers\u2019 to \u2018politics of singularisation\u2019: Patients\u2019 activism and engagement in research on rare diseases in France and Portugal<\/strong><\/p>\n

Vololona\u00a0Rabeharisoa, Michel\u00a0Callon, Angela Marques\u00a0Filipe, Jo\u00e3o Arriscado\u00a0Nunes, Florence\u00a0Paterson and Fr\u00e9d\u00e9ric\u00a0Vergnaud<\/p>\n

 <\/p>\n","protected":false},"excerpt":{"rendered":"

Coordinated by Vololona Rabeharisoa (CSI), Madeleine Akrich (CSI), and Tiago Moreira (Durham University), this special issue provides empirical data and analysis on what the authors call “evidence-based activism”. This notion has been proposed to capture patients\u2019 and health activists\u2019 groups\u2019 focus on knowledge production and knowledge mobilisation in the governance of health issues.<\/p>\n","protected":false},"featured_media":8996,"template":"","meta":{"_acf_changed":false},"class_list":["post-7573","actualite","type-actualite","status-publish","has-post-thumbnail","hentry","entry","has-media"],"acf":[],"_links":{"self":[{"href":"https:\/\/i3-cnrs.fr\/en\/wp-json\/wp\/v2\/actualite\/7573","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/i3-cnrs.fr\/en\/wp-json\/wp\/v2\/actualite"}],"about":[{"href":"https:\/\/i3-cnrs.fr\/en\/wp-json\/wp\/v2\/types\/actualite"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/i3-cnrs.fr\/en\/wp-json\/wp\/v2\/media\/8996"}],"wp:attachment":[{"href":"https:\/\/i3-cnrs.fr\/en\/wp-json\/wp\/v2\/media?parent=7573"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}